V.L., et al., Plaintiffs,
v.
John A. WAGNER, Director of the California Department of Social Services; David Maxwell-Jolly, Director of the California Department of Health Care Services; California Department of Health Care Services; California Department of Social Services, Defendants.
No. C 09-04668 CW.
United States District Court, N.D. California.
October 23, 2009.*1109 Anna Margaret Rich, Dara Lynn Schur, Frederick Philip Nisen, Jung Pham, Disability Rights California Bay Area Regional Office, Oakland, CA, Charles Hobson Wolfinger, Attorney at Law, San Diego, CA, Deborah Alyse Dorfman, Marilyn Lee Holle, Melinda Ruth Bird, Disability Rights California, Paula D. Pearlman, Shawna L. Parks, Los Angeles, CA, Sujatha Jagadeesh Branch, Disability Rights California Sacramento Regional Office, Sacramento, CA, Eve Hedy Cervantez, Peder J. Thoreen, Stacey M. Leyton, Stephen P. Berzon, Altshuler Berzon LLP, San Francisco, CA, for Plaintiffs.
ORDER GRANTING PLAINTIFFS' MOTION FOR A PRELIMINARY INJUNCTION
CLAUDIA WILKEN, District Judge.
Plaintiffs are disabled and elderly Californians who need in-home assistance with one or more of the activities of daily living, such as eating, bathing, toileting or taking medication, in order to live safely at home without risk of serious injury or harm. Plaintiffs seek to prevent the State from applying a change in the law to reduce or terminate these services to over 130,000 people who receive them from the state In-Home Supportive Services (IHSS) program, by changing the eligibility criteria of the program in a way that, the Court concludes, likely violates federal law. This change would reduce or terminate services to recipients based on numerical rankings and a complicated mathematical formula devised years ago, which was not designed, and has never been used, to measure an individual's need for care.
Plaintiffs provide ample evidence that they and others like them will be irreparably harmed if they lose their in-home help. They will be unable to care for themselves, suffer injuries, and be relegated to emergency rooms, hospitals, and other institutions. Although the State counters that its budget crisis requires such cuts, and the Court weighs this in the balance, the increase in more expensive hospitalization and institutionalization of needy disabled and elderly people will likely outweigh the short-term savings. And in any event, the human suffering that will be caused by the change in the law justifies the Court's preliminary injunction against the implementation of this change.
BACKGROUND
Under the 1965 federal Medicaid Act, the federal government financially assists participating states that provide medical services to eligible beneficiaries. California participates in Medicaid through the Medi-Cal Program. In 1973, California established In-Home Supportive Services (IHSS) as part of its Medi-Cal program to provide assistance with the tasks of daily living to low-income elderly and disabled persons. IHSS is funded with a combination of state, county and federal Medicaid monies. Id. § 12306. Over 360,000 IHSS caregivers serve over 440,000 individuals in California. Sixty percent of IHSS recipients are senior citizens.
*1110 Those who qualify for IHSS are persons "who are unable to perform the services themselves and who cannot safely remain in their homes or abodes of their own choosing unless these services are provided." Welf. & Inst.Code § 12300(a). The California Department of Social Services (CDSS) Manual of Policies and Procedures (MPP) similarly directs that IHSS "provides assistance to those eligible aged, blind and disabled individuals who are unable to remain safely in their own homes without this assistance." MPP § 30-700.1.[1] The MPP also states that a particular service will not be authorized unless the social worker evaluating the individual "has determined that the recipient would not be able to remain safely in his/her own home without IHSS" and "performance of the service by the recipient would constitute such a threat to his/her health/safety that he/she would be unable to remain in his/her own home." Id. § 30-761.13-14.
In 1988, fifteen years after the IHSS program was created, the State legislature passed a law requiring the CDSS to develop a uniform needs assessment tool "to assure that in-home supportive services are delivered in all counties in a uniform manner." Cal. Welf. & Inst.Code § 12309(a).
The CDSS developed and implemented such a tool, calling it the Uniformity Assessment System. The System defined ranks of one to five for social workers to use in use in rating elderly or disabled individuals' functional abilities in each of fourteen areas:[2] housework; laundry; shopping and errands; meal preparation and clean up; mobility inside the residence; bathing and grooming; dressing; bowel, bladder and menstrual; transfer from one position to another; eating; respiration; memory; orientation; and judgment. The ranks are defined as follows:
Rank one. A recipient's functioning shall be classified as rank one if his or her functioning is independent, and he or she is able to perform the function without human assistance, although the recipient may have difficulty in performing the function, but the completion of the function, with or without a device or mobility aid, poses no substantial risk to his or her safety.
Rank two. A recipient's functioning shall be classified as rank two if he or she is able to perform a function, but needs verbal assistance, such as reminding, guidance, or encouragement.
Rank three. A recipient's functioning shall be classified as rank three if he or she can perform the function with some human assistance, including, but not limited to, direct physical assistance from a provider.
Rank four. A recipient's functioning shall be classified as rank four if he or she can perform a function, but only with substantial human assistance.
Rank five. A recipient's functioning shall be classified as rank five if he or she cannot perform the function, with or without human assistance.
Id. § 12309(d).
Social workers annually re-assess each recipient's rank in the fourteen areas on an *1111 individualized basis. MPP § 30-761.1. These social workers are specifically trained to determine a recipient's level of functional ability. Since 2005, the State has spent $10 million providing eight days of training to over 16,000 social workers who conduct IHSS assessments.
However, the ranks have never before been used to determine IHSS eligibility. Rather, as noted above, social workers were required to find a person eligible for services if he or she "would not be able to remain safely in his/her own home without IHSS." Id.; see also Welf. & Inst.Code § 12300(a); MPP § 30-700.1. By definition, an individual given a rank of two through five in any of the functions needs some IHSS assistance to remain safely in his or her own home.
Rather, the purpose of the ranks was to help social workers determine with uniformity the number of hours of a particular service elderly and disabled individuals needed. In the MPP, time guidelines are provided for each rank for some tasks.
As another part of the Uniformity Assessment System, the State created the Functional Index (FI) Score in 1988. Each recipient is given an overall Functional Index Score between 1.00 and 5.00, which is calculated based on a weighted average of eleven of the recipient's fourteen ranks of functional ability.[3] The mental tasks (i.e., memory, orientation and judgment) are not counted in this calculation. The State calculated the weights by using the following method: first, the State computed the county-wide average number of hours per week of IHSS provided for each task for the people who received help with that task; second, all the county-wide averages more than one standard deviation away from the mean were removed from the computation; third, the county-wide averages from each of the remaining counties were then averaged to get a state-wide average of hours per week for each task; fourth, the state-wide average of hours per week for each task were added together to get a state-wide number representing the average IHSS hours per week for all of the tasks; fifth, the state-wide average for each task was divided by the state-wide average for all of the tasks together. The quotient was the weight used to calculate the FI Score. In effect, then, tasks that take more time are weighted more heavily.
These weights were calculated in 1988 and have not been changed since. The weights are as follows:
Function Weight
Housework .038
Laundry .037
Shopping and Errands .040
Meal Preparation and Clean Up .222
Mobility Inside .079
Bathing and Grooming .095
Dressing .057
Bowel, Bladder and Menstrual .129
Transfer .094
Eating .127
Respiration .082
An individual's FI Score is calculated using these weights as follows: A one is subtracted from his or her rank for each function. Each of those numbers is multiplied by the weight assigned to the respective functions. (As noted above, the mental functioning ranks are not counted.) These products are totaled and a one is added to the sum. The result is the FI Score. In a July 1, 1989 Report to the Legislature on IHSS Uniformity, the CDSS stated, "Admittedly, the description of the application of the formula is difficult to conceptualize." Report to Legislature: IHSS Uniformity at 10.
In effect, then, a person who needs help with a greater number of different tasks, especially tasks usually that take more time perform, will have a higher score than a person who needs help with a smaller *1112 number of different tasks, irrespective of the severity of their need for the help. Need for assistance with the mental functioning tasks of memory, orientation and judgment is not considered in the Score.
FI Scores were intended to be used by social workers and county and state administrators "to compare the FI Scores and FI Hours of clients on their caseload." All County Letter No. 88-118 at 5. For example, if the hours of IHSS approved by a social worker "do not seem to correlate to the FI Score, the worker should be able to identify unique circumstances which account for the variance." Id. The FI Score was specifically not meant to be used as a tool to predict the number of hours an individual beneficiary needed. Id. at 4. More importantly, the FI Score was not created to be an eligibility criterion to determine whether an individual beneficiary needed services to live safely in his or her home.
In response to California's current budget crisis, the Legislature passed and on July 28, 2009, the Governor signed ABX4 4, which put numerical ranks and FI Scores to a new use. Specifically, ABX4 4 amended section 12309 and added section 12309.2 to the California Welfare and Institutions Code, to provide that IHSS recipients must have a numerical rank of at least four in a given category of domestic and related services (i.e. housework; laundry; shopping and errands; and meal preparation and clean up) to receive any services in that category, and must have an FI Score of at least 2.0 to receive any IHSS services at all.
ABX4 4 exempts individuals authorized to receive either protective supervision or paramedical services.[4] These beneficiaries will continue to receive all of their IHSS services regardless of their FI Scores and numerical ranks for domestic and related services. Cal. Welf. & Inst.Code §§ 12309(e)(2) & 12309(a)(3). Defendants claim that if recipients rank at five in any one of the mental functioning categories they receive protective supervision services and are exempt from the ABX4 4 requirements.[5] However, Plaintiffs dispute this point because protective supervision is available only if "a need exists for twenty-four-hours-a-day of supervision in order for the recipient to remain at home safely," MPP § 30-757.173, and it is not clear that everyone with a five in one of these categories requires twenty-four hour care.
The new eligibility standards under ABX4 4 were to go into effect on November 1, 2009. CDSS estimates that 97,000 disabled and elderly individuals would lose domestic and related services and 36,000 would lose all IHSS services.
CDSS planned to deliver Notices of Action to recipients whose IHSS benefits would be reduced or eliminated by ABX4 4. The notices were not sent because the Court issued a temporary restraining order. Defendants have submitted to the Court the notices they intended to send. If a recipient's services would be terminated altogether because his or her FI Score is less than 2.0, the notice would state:
AS OF 11/01/2009, THE IN-HOME SUPPORTIVE SERVICES (IHSS) YOU HAVE BEEN GETTING WILL STOP. HERE'S WHY: A CHANGE IN THE LAW SET A SPECIFIC NEED LEVEL NECESSARY TO GET IHSS *1113 THAT IS DETERMINED BY FUNCTIONAL INDEX SCORE. THE NEED FOR IHSS IS DETERMINED UTILIZING A UNIFORM NEEDS ASSESSMENT TOOL DESIGNED TO EVALUATE FUNCTIONING IN ADLS (ACTIVITIES OF DAILY LIVING) AND IADLS (INSTRUMENTAL ACTIVITIES OF DAILY LIVING) MPP 12309(C)(1). THE UNIFORM ASSESSMENT TOOL EVALUATES FUNCTIONAL ABILITY ON A DEFINED SCALE MADE UP OF 5 RANKS: 1INDEPENDENT; 2 REQUIRES VERBAL ASSISTANCE; 3REQUIRES SOME HUMAN ASSISTANCE; 4REQUIRES SUBSTANTIAL HUMAN ASSISTANCE AND 5CANNOT PERFORM WITH OR WITHOUT HUMAN ASSISTANCE. RANKING IS DONE IN 11 AREAS OF PHYSICAL FUNCTIONING. THEN A FUNCTIONAL INDEX (FI) SCORE IS DETERMINED UTILIZING A WEIGHTED AVERAGE CALCULATION APPLIED TO THE RANKINGS IN THESE 11 AREAS. THE FUNCTIONAL INDEX SCORE PROVIDES A MEASUREMENT OF RELATIVE DEPENDENCE ON HUMAN ASSISTANCE FOR IHSS TASKS. INDIVIDUALS WITH A FUNCTIONAL INDEX SCORE BELOW 2.0 ARE NOT ELIGIBLE TO RECEIVE IHSS (W & IC 12309(F)(2)).
Carroll Decl., Exh. C. The notice then lists the recipient's Functional Index Score as well as his or her ranks in each of the eleven functions. A cursory and opaque one-page description of how the State calculates the Score would be enclosed.
If some of a recipient's services would be terminated because his or her rank in those functions is below four, the notice would state:
AS OF 11/01/2009, THE HOURS OF SERVICE FOR DOMESTIC YOU HAVE BEEN GETTING WILL STOP. HERE'S WHY: A CHANGE IN THE LAW SET A SPECIFIC NEED LEVEL NECESSARY TO GET DOMESTIC OR RELATED SERVICES THAT IS DETERMINED BY FUNCTIONAL ABILITY IN THAT AREA. FUNCTIONAL ABILITY IS MEASURED ON A 5 RANK SCALE: 1INDEPENDENT; 2REQUIRES VERBAL ASSISTANCE; 3REQUIRES SOME HUMAN ASSISTANCE; 4REQUIRES SUBSTANTIAL HUMAN ASSISTANCE AND 5CANNOT PERFORM WITH OR WITHOUT HUMAN ASSISTANCE. INDIVIDUALS WITH A RANK BELOW 4.0 ARE NOT ELIGIBLE TO GET THE ASSOCIATED DOMESTIC OR RELATED SERVICE (W & IC 12309(E)(1)). YOUR FUNCTIONAL RANK FOR DOMESTIC IS [1, 2 OR 3]. THEREFORE, YOUR NEED DOES NOT MEET THE REQUIRED LEVEL TO GET HELP WITH DOMESTIC SERVICES.
The notice would then repeat the same paragraph for each additional service eliminated.
At the bottom of the page, both forms of notice state in Spanish, "If you do not understand the information or notice, contact the social worker in your county. The county should provide you with an interpretation service free of charge."
The back of both forms of notice advises recipients that they have a right to a "conference with representatives of CDSS to talk about this intended action." Recipients also have the right to receive a state hearing if they request it within ninety days of the mailing date of the notice. If the request is made "before the effective date of the county's proposed action . . . services may continue until the hearing." If a recipient looks back to the first page of the notice, he or she will learn that the date alluded to is November 1, 2009.
*1114 On October 5, 2009, Plaintiffs filed this complaint and motion for a temporary restraining order and/or preliminary injunction.[6] Plaintiffs claim that amended sections 12309(e) and 12309.2 of the California Welfare and Institutions Code violate the Medicaid Act, the Americans with Disabilities Act, Section 504 of the Rehabilitation Act and the Due Process Clause of the United States Constitution. The Court granted Plaintiffs' request to expedite the briefing and set a hearing on the motion for October 19, 2009 based on Plaintiffs' understanding that the notices would be mailed on October 20. Defendants did not disabuse the Court of this understanding.
On October 14, Deputy Attorney General Gregory Brown notified Plaintiffs that it was his "understanding that the Notices of Action will be going out to recipients on October 15, 2009." Surprised at State Defendants' decision to move forward with the Notices of Action earlier than expected despite the pending motion, Plaintiffs promptly moved for an immediate temporary restraining order to enjoin State Defendants from issuing Notices of Action to IHSS recipients regarding the subject matter of this litigation any time prior to this Court's ruling on the preliminary injunction motion. The Court granted the temporary restraining order.[7]
LEGAL STANDARD
"A plaintiff seeking a preliminary injunction must establish that he is likely to succeed on the merits, that he is likely to suffer irreparable harm in the absence of preliminary relief, that the balance of equities tips in his favor, and that an injunction is in the public interest." Winter v. Natural Res. Def. Council, Inc., ___ U.S. ___, 129 S. Ct. 365, 374, 172 L. Ed. 2d 249 (2008). "In each case, courts `must balance the competing claims of injury and must consider the effect on each party of the granting or withholding of the requested relief.'" Id. at 376 (quoting Amoco Prod. Co. v. Vill. of Gambell, Alaska, 480 U.S. 531, 542, 107 S. Ct. 1396, 94 L. Ed. 2d 542 (1987)).
DISCUSSION
I. Likelihood of Success on the Merits
A. Medicaid Act Claims
As mentioned above, Congress established the Medicaid program in 1965 to enable states to provide medical services to individuals with limited abilities to pay for health care. 42 U.S.C. § 1396-1396v. A state's participation in Medicaid is voluntary, but when a state chooses to participate, it must comply with the Medicaid Act and its implementing regulations. 42 U.S.C. § 1396.
1. Comparability Requirement
The "comparability" requirement of the Medicaid Act mandates comparable services for individuals with comparable needs and is violated when some recipients are treated differently than others where *1115 each has the same level of need. 42 U.S.C. § 1396a(a)(10)(B); see also 42 C.F.R. § 440.240; Jenkins v. Washington State Dep't of Social & Health Servs., 160 Wash.2d 287, 157 P.3d 388, 392 (2007); Sobky v. Smoley, 855 F. Supp. 1123, 1139 (E.D.Cal.1994) (comparability requirement "creates an equality principle" for all medically needy individuals); Schott v. Olszewski, 401 F.3d 682, 688-89 (6th Cir.2005); White v. Beal, 555 F.2d 1146, 1151-52 (3d Cir.1977). The state may "place appropriate limits on a service based on such criteria as medical necessity or on utilization control procedures." 42 C.F.R. § 440.230(d). However, the state may not "arbitrarily deny or reduce the amount, duration, or scope of a required service. . . to an otherwise eligible recipient solely because of the diagnosis, type of illness, or condition." 42 C.F.R. § 440.230(c).
The use of numerical ranks and FI Scores to determine eligibility for IHSS services likely violates the comparability requirement because neither reasonably measures the individual need of a disabled or elderly person for a particular service.
Numerical ranks are particularly inaccurate measures of the needs of individuals with mental impairments, such as elders with Alzheimer's disease. Individuals with cognitive and psychiatric disabilities frequently require verbal rather than physical assistance. Therefore, many of these individuals receive numerical ranks of two rather than three or four. Numerical ranks of two for recipients with mental disabilities reflect the nature of the assistance needed, not the severity of the need. Disabled and elderly individuals with numerical ranks of two have no less need for verbal assistance than individuals with severe physical impairments have for physical assistance. For example, elders may need reminders to eat on a regular basis, take medication or avoid eating foods contraindicated with certain medications. As one IHSS Program manager explains:
Often all that someone with a cognitive or psychiatric disability needs in order to maintain a safe and independent living situation is someone who can come by every morning to encourage or remind them to get out of bed, bathe, get dressed, take medication, and have breakfast. . . . [W]ith no IHSS provider visiting regularly . . . [a] person's environment and ability to live safely in the community can fall apart in a matter of days, potentially leading to an exacerbated medical condition, hospitalization, institutionalization, homelessness and/or death.
Nicco Decl. ¶ 23.
A 1996 Study by the Institute for Social Research at California State University Sacramento to assess the FI Score as a predictor of IHSS hours noted that "whether provider assistance is verbal (rank 2) or physical (3) their presence during task performance is necessary and therefore the practical distinction between the two ranks is elusive." Kline Decl., Exh. D at 14.[8] As noted above, all ranks, *1116 two through five, reflect a social worker's determination that IHSS recipients are "unable to perform the services themselves" and "cannot safely remain in their homes or abodes of their own choosing unless these services are provided." Welf. & Inst.Code § 12300(a).
Similarly, the Functional Index Score is not an accurate measure of need. It does not weigh the critical nature of the services recipients need and it systematically disadvantages certain groups of recipients. If a person with a particular type of disability does not need assistance with most activities, but critically needs substantial assistance with a few, he or she will likely receive a low FI Score, and will be deprived of all IHSS services.
For instance, recipients with seizure disorders generally have an FI Score below 2.0 because they only need assistance with bathing and cooking; however, it would be dangerous for these individuals to perform these activities themselves. Blind recipients also generally have FI Scores below 2.0, but they critically need assistance traveling to medical appointments.
Nor does the length of time a task normally takes necessarily equate with the importance of the task to an individual's health and safety. But an elderly person who needs help with tasks which on average are less time-consuming, such as mobility inside the home, transfer from sitting to standing or respiration, is more likely to receive a lower FI Score and lose all her services, than is one who needs help with the kinds of tasks that tend to take more time, such as meal preparation.
In sum, the FI Scoring system favors elderly and disabled people with many different needs, especially needs for help with tasks that are particularly time-intensive, over those with fewer different needs, and needs for help with tasks that are less time-intensive, even though the unmet needs of some of the latter recipients may be equally or more life-threatening than those of the former. The FI Score simply does not measure the severity of need.
The FI Score is particularly inaccurate as a measure of the needs of children and adolescents, whose services will be terminated at disproportionately high rates. Collins Decl. ¶ 7 (thirty-six percent of children in San Luis Obispo County will be terminated compared to twenty-five percent of adults); Nicco Decl. ¶¶ 8-9 (twenty-three percent of children in San Francisco County will be terminated compared to eight percent of adults).
Because children, with or without disabilities, are not generally expected to perform such tasks as meal preparation and housecleaning, children with disabilities are automatically ranked at one on such tasks. This rank reflects, not the severity of their disabilities, but only the expectations of their age group. To illustrate, a child or adolescent with a disability may have high numerical ranks in other tasks because of serious unmet needs such as mobility inside the home, transfer from one position to another, bathing, dressing, or toileting and menstruation. Nonetheless, his or her composite FI Score will be disproportionately lower than that of an adult with the same disability because the adult will likely have more tasks rated above a one. Children's and adolescents' critical needs, though fewer in number, will not be met, merely because they do not have as many unmet needs as adults with the same level of disability.
FI Scores, like the numerical ranks, are also particularly inaccurate measures for individuals with mental impairments. As noted above, FI Scores do not count the numerical ranks assigned by social workers for memory, judgment and orientation. Therefore, mentally disabled individuals will generally have lower FI Scores than those with physical disabilities. Individuals *1117 with mental disabilities may need only a few critical services, such as medication management and assistance with domestic and related tasks. But, because they do not need help with a larger number of personal care functions such as bowel/bladder, ambulation or respiration, their FI Scores will generally be below 2.0. Nicco Decl. ¶ 26; Syropiatko Decl. ¶ 6; Guerra Decl. ¶ 12; Baran Decl. ¶ 14; Oster Decl. ¶ 11. Nevertheless, individuals with mental impairments are no less in need of IHSS services than those with physical impairments.
Jenkins, a recent opinion from the Washington State Supreme Court, is instructive. In that case, the State had previously determined the number of hours of home health care services needed by recipients, based on assessment of their ability to perform daily living activities. The State then adopted a "shared living rule" which reduced the level of household services to recipients who lived with someone else. The reduction was not based on an individual's needs for service, that is, it did not consider whether a recipient lived with someone who actually would help. The court held that the State violated the comparability requirement because it "reduce[d] a recipient's benefits based on a consideration other than the recipient's actual need." Jenkins, 157 P.3d at 390.
Here, IHSS recipients have been assessed in an individualized process to determine the services they need to remain safely in their homes. With the passage of ABX4 4, the State has mechanically applied the numerical ranks and FI Score to a use for which they were not designed. The Score is not a meaningful measure of an individual's degree of need for services. Because need is the only basis upon which distinctions between recipients can be made without violating the comparability requirement, Plaintiffs have made a strong showing of likelihood of success on the merits that ABX4 4 violates the comparability requirement of the Medicaid Act.
2. Reasonable Standards Requirement
The Medicaid Act requires that all participating states use "reasonable standards (which shall be comparable for all groups). . . for determining eligibility for and the extent of medical assistance under the plan which . . . are consistent with the objectives" of the program. 42 U.S.C. § 1396a(a)(17). The primary objectives of the Medicaid program are to provide medical assistance to individuals whose income and resources are insufficient to meet the costs of necessary medical services and to furnish "rehabilitation and other services to help such . . . individuals attain and retain capability for independence or self care." 42 U.S.C. § 1396-1.
For the reasons discussed above, numerical ranks and FI Scores were not designed as a measure of eligibility or need for IHSS services and cannot reasonably be used for this purpose. In a manual produced by CDSS to help train social workers across the state about IHSS, the agency described the FI Score in response to the question, "How does the state compute the Functional Index," as follows: "that score has been tested and is not meaningful, so it is a moot point." Kline Decl., Ex. E at 8. A numerical rank of two or above for any particular task indicates that the recipient cannot live safely in his or her home without assistance for that task; however, under ABX4 4, domestic and related services will be terminated for all recipients with numerical ranks below four.
Plaintiffs have shown a likelihood of success on the merits of their claim that the law employs an unreasonable standard to determine the extent of medical assistance, in violation of § 1396a (a)(17).
Defendants also argue that Plaintiffs' claims under the reasonable standards *1118 requirement must fail because these provisions are not privately enforceable using 42 U.S.C. § 1983. Defendants rely on Watson v. Weeks, 436 F.3d 1152 (9th Cir. 2006). In that case, the Ninth Circuit held that Congress did not intend the reasonable standards requirement of Section 1396a(a)(17) to create a private right of action for individuals and organizations under § 1983. However, Watson does not bar a request for injunctive relief under the Supremacy Clause for violations of the Medicaid Act. Independent Living Ctr. S. Cal. v. Shewry, 543 F.3d 1050, 1056-57 (9th Cir.2008), cert. denied, ___ U.S. ___, 129 S. Ct. 2828, 174 L. Ed. 2d 554 (2009). In Independent Living, the Ninth Circuit noted, "The Supreme Court has repeatedly entertained claims for injunctive relief based on federal preemption, without requiring that the standards for bringing suit under § 1983 be met. . . ." Id. at 1055. The court continued that "a plaintiff seeking injunctive relief under the Supremacy Clause on the basis of federal preemption need not assert a federally created `right,' in the sense that term has been recently used in suits brought under § 1983." Id. at 1058. Although Independent Living involved a different provision of the Medicaid Act, 42 U.S.C. § 1396a(a)(30)(A), nothing about the facts or the court's analysis in that case indicates that its holding would not apply to the statute at issue in the present case. See Lankford v. Sherman, 451 F.3d 496, 509-13 (8th Cir.2006). Although Section 1396a(a)(17) is not enforceable under § 1983, Plaintiffs' claims for injunctive relief may be brought under the Supremacy Clause.
3. Sufficiency Requirement
The regulations implementing the Medicaid Act contain a "sufficiency" requirement, which mandates, "Each service must be sufficient in amount, duration, and scope to reasonably achieve its purpose." 42 C.F.R. § 440.230(b). When a state commits to provide a Medicaid service, the sufficiency requirement ensures that it adequately fulfills that obligation.
Defendants argue that ABX4 4 satisfies the sufficiency requirement because the law "will ensure that individuals with a moderate to high level of need will continue to receive all necessary services." Opposition at 22. However, Defendants fail to explain how the purposes of the programto enable disabled and elderly people to remain in their homes safelywill still be fulfilled if domestic and related services for 97,000 needy recipients are eliminated.
A 2009 report by the UCLA Center for Health Policy Research assessing the cuts to IHSS found that "domestic services are in some respects the `glue' that permits older people to stay in their homes. Shopping and meal preparation are especially essential, since they influence how much and how well older people eat." Benjamin Decl., Ex. B at 13. "Weight loss in elders is often the reason that they end up being placed into nursing homes. These domestic and related services are vital." Id. at ¶ 30.
The services currently provided through IHSS have already been determined by social workers to be "necessary" to permit elderly and disabled individuals to remain safely in their homes. MPP § 30-761.1. Thus, the elimination of these services will likely leave affected individuals without a level of service sufficient to achieve the purpose of the program. Accordingly, the Court concludes that Plaintiffs are likely to succeed on their sufficiency claim.[9]
*1119 B. Americans with Disabilities Act Claim
The Americans with Disabilities Act (ADA) and the Rehabilitation Act prohibit discrimination based on disability. 42 U.S.C. § 12132; 29 U.S.C. § 794(a). Unnecessary isolation is a form of discrimination against people with disabilities. As the Supreme Court has explained, "[u]njustified isolation of the disabled" amounts to discrimination because institutional placement "perpetuates unwarranted assumptions that persons so isolated are incapable or unworthy of participating in community life" and "severely diminishes everyday life activities of individuals, including family relations, social contacts, work options, economic independence, educational advancement, and cultural enrichment." Olmstead v. L.C. ex rel. Zimring, 527 U.S. 581, 597, 601, 119 S. Ct. 2176, 144 L. Ed. 2d 540 (1999).
Thus, both the ADA and the Rehabilitation Act contain an "integration mandate" which "serves one of the principal purposes of Title II of the ADA: ending the isolation and segregation of disabled persons." Arc of Washington State v. Braddock, 427 F.3d 615, 618 (9th Cir.2005). States are required to provide care in integrated environments for as many disabled persons as is reasonably feasible, so long as such an environment is appropriate to their health needs. Specifically, the ADA regulations provide: "A public entity shall administer services, programs, and activities in the most integrated setting appropriate to the needs of qualified persons with disabilities." 28 C.F.R. § 35.130(d).
"The `most integrated setting' is defined as `a setting that enables individuals with disabilities to interact with non-disabled persons to the fullest extent possible.'" Brantley, 656 F.Supp.2d at 1170 (citing 28 C.F.R. pt. 35 app. A; Olmstead, 527 U.S. at 592, 119 S. Ct. 2176).
Plaintiffs allege that ABX4 4 violates the "integration mandate" of the ADA and the Rehabilitation Act by placing people in serious risk of being forced to move out of their homes to the less integrated setting of institutions. Although Olmstead addressed ongoing institutionalization, plaintiffs who currently reside in community settings may assert ADA integration claims to challenge state actions that give rise to a risk of unnecessary institutionalization. See Fisher v. Oklahoma Health Care Auth., 335 F.3d 1175, 1181-82 (10th Cir.2003) (imposition of cap on prescription medications placed participants in community-based program at high risk for premature entry into nursing homes in violation of ADA); Ball v. Rodgers, 2009 WL 1395423, at *5 (D.Ariz.2009) (failure to provide them with needed services "threatened Plaintiffs with institutionalization, prevented them from leaving institutions, and in some instances forced them into institutions in order to receive their necessary care" in violation of the ADA and Rehabilitation Act); Mental Disability Law Clinic v. Hogan, 2008 WL 4104460, at *15 (E.D.N.Y.2008) ("even the risk of unjustified segregation may be sufficient under Olmstead").
Plaintiffs have submitted substantial evidence from experts, county officials, caregivers and individual recipients showing that class members face a severe risk of institutionalization as a result of losing the services that ABX4 4 would eliminate. For instance, individuals with mental disabilities *1120 who lose IHSS assistance to remind them to take medication, attend medical appointments and perform tasks essential to their continued health are at a severely increased risk for institutionalization. Elderly and disabled individuals with unmet in-home care needs will likely suffer falls which will lead to hospitalization and subsequent institutionalization. Elderly individuals who lose meal preparation services will decline in health and risk being placed in a nursing home.
Defendants claim that Plaintiffs are not at risk of institutionalization because some may have family members who may be able to take over the care once provided by IHSS and some might find care through some other community-based service. However, Defendants bear the ultimate responsibility for ensuring the State's compliance with federal disability law. "Thus, to the extent that Defendants are claiming that alternative services satisfy their obligations under the integration mandate, Defendants certainly bear the burden of ensuring more than a `theoretical' availability of such services." Brantley, 656 F.Supp.2d at 1174. Moreover, the record demonstrates that alternative services are not available for a large portion of the class members who face the risk of institutionalization. Accordingly, the Court concludes that Plaintiffs have shown a likelihood of success on the merits of their claim that Defendants violated the integration mandate.
C. Due Process Claim
Due process requires that the state must provide "notice reasonably calculated, under all the circumstances, to apprise interested parties of the pendency of the action and afford them an opportunity to present their objections." Mullane v. Central Hanover Bank & Trust Co., 339 U.S. 306, 314, 70 S. Ct. 652, 94 L. Ed. 865 (1950). IHSS recipients must receive "timely and adequate notice detailing the reasons for termination and an effective opportunity to defend" themselves. Goldberg v. Kelly, 397 U.S. 254, 268-69, 90 S. Ct. 1011, 25 L. Ed. 2d 287 (1970). To comport with due process, notice must be "tailored to the capacities and circumstances" of the recipients who must decide whether to request a hearing. Id. at 268, 90 S. Ct. 1011. "The government must consider unique information about an intended recipient regardless of whether a statutory scheme is reasonably calculated to provide notice in the ordinary case." Jones v. Flowers, 547 U.S. 220, 221, 126 S. Ct. 1708, 164 L. Ed. 2d 415 (2006).
Here, the notices Defendants plan to mail to IHSS recipients likely do not comport with due process. Many class members, because of their disabilities or inability to read English or both, will be unable to understand and act upon the notice within ten days of receipt so that they can request a fair hearing and continue to receive IHSS services. For instance, fifteen percent of IHSS recipients speak only Spanish. There is one line at the bottom of the notices in Spanish that tells recipients to contact "the social worker in your county" if they do not understand the information. This phrase is misleading and confusing. The notice says that the county should provide free translation services but it does not tell recipients how to get this service nor has the State made a showing that each county actually will provide this service. Further, the notice does not warn Spanish-speaking recipients that this is an important notice regarding termination or reduction of benefits. Thirty-four percent of recipients are monolingual in a language other than English or Spanish. Thus, this notice will be entirely meaningless to them. It is not reasonable to expect these individuals to obtain translation of the notice in sufficient time to act *1121 upon it within ten days, to receive aid pending termination.
The notice is also difficult to read. The print is small, single spaced and in all capital letters. It contains unexplained acronyms and the description of numerical ranks and FI Scores is virtually unintelligible. The elderly and disabled individuals reading these notices will have a difficult time understanding them, let alone taking the affirmative action required. Many IHSS recipients cannot easily leave their homes due to their disabilities; the notice does not inform them of their right to have a hearing at home to dispute the service cuts.
CDSS has recognized that, before this notice, IHSS "recipients have not previously been informed of their FI Ranks or FI Scores. . . . the NOA [Notice of Action] implementing this change in law will be the first time recipients have been informed of their FI Ranks or FI Scores." All County Letter No. 09-56, sent on October 1, 2009. The terse notice and one page description of how the FI Score is calculated do little to inform recipients of the reasons for termination or how they might be able to rebut the decision to terminate their IHSS services. Therefore, the Court concludes that Plaintiffs have shown a likelihood of success on the merits of their claim that the notice violates due process.[10]
II. Irreparable Harm, Balance of Hardships and the Public Interest
Numerous federal courts have recognized that the reduction or elimination of public medical benefits irreparably harms the participants in the programs being cut. See Beltran v. Myers, 677 F.2d 1317, 1322 (9th Cir.1982) (holding that possibility that plaintiffs would be denied Medicaid benefits sufficient to establish irreparable harm); Newton-Nations v. Rogers, 316 F. Supp. 2d 883, 888 (D.Ariz.2004) (citing Beltran and finding irreparable harm shown where Medicaid recipients could be denied medical care as a result of their inability to pay increased co-payment to medical service providers); Edmonds v. Levine, 417 F. Supp. 2d 1323, 1342 (S.D.Fla. 2006) (finding that state Medicaid agency's denial of coverage for off-label use of prescription pain medication would irreparably harm plaintiffs).
In addition, Plaintiffs have presented ample evidence to support their claim that they will suffer immediate and irreparable harm unless the Court issues a preliminary injunction. Counselors who work with IHSS recipients predict a "humanitarian disaster" and premature deaths. Baran Decl. ¶ 18; Goldberg Decl. ¶¶ 6-7. Some individuals who lose their IHSS may neglect to take vital medications or take them improperly. Others will be unable to leave their house to obtain food, medication and other necessities. Without an IHSS caregiver to transport recipients to doctor's appointments, many will go without essential care. Some recipients will try to clean their home or cook food and injure themselves as a result. Other recipients, because of mental illness or lack of appetite, need assistance in order to eat at all.
Entire families will be destabilized when a child or family member is deprived of IHSS because relatives serving as caregivers will be forced to seek other jobs without a way to care for their loved ones. See e.g., Hathaway Decl. ¶ 5; Crockett Decl. ¶¶ 19-20; Kaljian Decl. ¶ 18. Even a temporary *1122 interruption in services may "result in damaging setbacks" for the affected individual. Baran Decl. ¶ 20. The Executive Director of the IHSS Consortium in San Francisco stated:
Each one of the IHSS recipients affected by the cuts represents a person with a disability who has been stabilized at home, often through a painstaking process that takes months or even years, to find the right attendant, the right home or apartment, the right combination of services. All of this will be lost. And even if the cuts are restored later, it will be virtually impossible to rebuild the safe living situations people have now.
Id. There is also a serious risk that individuals with mental or cognitive disabilities will become homeless if they lose IHSS services. Once homeless, mentally ill individuals decline rapidly and could end up anywhere from a psychiatric hospital to jail.
As noted above, if ABX4 4 is implemented, class members will face a severe risk of unnecessary institutionalization.[11] Institutionalizing individuals who can comfortably survive in their home with the help of IHSS caregivers will "cause Plaintiffs to suffer injury to their mental and physical health, including a shortened life, and even death for some Plaintiffs." Crabtree v. Goetz, 2008 WL 5330506, at *30 (M.D.Tenn.2008).
The balance of hardships also weighs in Plaintiffs' favor. If the preliminary injunction does not issue, the State Defendants' sole injury will be the financial costs associated with continuing to provide services under the status quo. The Court weighs California's budget crisis in the balance. However, "[a] budget crisis does not excuse ongoing violations of federal law, particularly when there are no adequate remedies available other than an injunction." Independent Living Ctr. v. Maxwell-Jolly, 572 F.3d 644, 659 (9th Cir.2009). If the State is of the view that some people are receiving IHSS services for their convenience or improved quality of life rather than need, individualized measures could be adopted to address this circumstance. Further, the Court notes that there is persuasive evidence that the IHSS cuts would actually cost the State tens of millions of additional dollars because in-home care is considerably less expensive than institutional care and IHSS caregivers reduce the need for expensive emergency room visits and hospitalization. Accordingly, the financial loss the State may suffer if ABX4 4 is not implemented does not outweigh the hardship Plaintiffs would suffer absent an injunction.
Lastly, the public interest weighs heavily in favor of granting relief. "It would be tragic, not only from the standpoint of the individuals involved but also from the standpoint of society, were poor, elderly, disabled people to be wrongfully deprived of essential benefits for any period of time." Lopez v. Heckler, 713 F.2d 1432, 1437 (9th Cir.1983).
III. Bond
Federal Rule of Civil Procedure 65(c) "invests the district court `with *1123 discretion as to the amount of security required, if any.'" Jorgensen v. Cassiday, 320 F.3d 906, 919 (9th Cir.2003) (emphasis in original; quoting Barahona-Gomez v. Reno, 167 F.3d 1228, 1237 (9th Cir.1999)). A district court has the discretion to dispense with the security requirement where giving security would effectively deny access to judicial review. See Save Our Sonoran, Inc. v. Flowers, 408 F.3d 1113, 1126 (9th Cir.2005) (citation omitted). Similarly, a district court may waive the bond requirement where the plaintiffs are indigent. See Walker v. Pierce, 665 F. Supp. 831, 844 (N.D.Cal. 1987). The Court waives the bond requirement for Plaintiffs because they are indigent and to ensure their ability to access the courts on behalf of themselves and other class members.
CONCLUSION
For the foregoing reasons, the Court grants Plaintiffs' motion for a preliminary injunction (Docket No. 16). Defendants and their successors, agents, officers, servants, employees, attorneys and representatives and all persons acting in concert or participating with them are enjoined from implementing the provisions of ABX4 4 that amended Sections 12309(e) and 12309.2 of the California Welfare and Institutions Code to terminate from eligibility for IHSS services those recipients with Functional Index Scores of less than 2.0 and to eliminate domestic and related services for recipients with functional ranks of less than 4 for those services.
The Court further orders that, to the extent that Defendants have already taken actions to eliminate eligibility for IHSS services for individuals with an FI Score under 2, or to eliminate eligibility for domestic and related services for individuals with functional ranks under 4, Defendants shall take all steps and commit all resources necessary to ensure that no otherwise eligible individual is denied eligibility for, or terminated from, IHSS, solely on the basis of an FI Score under 2.0, and that no otherwise eligible individual is denied eligibility for, or terminated from, receipt of domestic and related IHSS services, solely on the basis of a functional rank under 4. Defendants shall further ensure that there is no delay in paying IHSS providers for services rendered to individuals whom Defendants had planned to terminate or reduce IHSS eligibility on the basis of an FI score under 2.0 or a functional rank under 4. Defendants shall determine the method of implementing the preliminary injunction that will be the least expensive in the aggregate to the county and state taxpayers. Defendants may require the counties to re-enter manually the information about individual recipients whose IHSS services were scheduled to be terminated or reduced because their FI Scores were below 2.0 or their functional ranks for a particular domestic or related service were below 4 only if that is less expensive than doing it themselves. The State must reimburse the counties for their expenses. The State may instead restore the system back-up and re-enter the changes made in the interim.
To ensure that all relevant parties are aware of the Court's injunction, Defendants shall further rescind any directions or notices issued to any person or entity for the termination or reduction of IHSS benefits on the basis of an FI Score under 2 or functional ranks under 4; and shall notify all persons and entities that have received such directions or notices that such IHSS benefits will not be terminated or reduced. Defendants shall mail a notice to all IHSS recipients informing them, in language agreed upon by the parties, that the previously announced terminations or reductions in IHSS service will not go into effect. Defendants must mail this notice by Tuesday, October 27.
*1124 Defendants shall post a copy of this preliminary injunction with an explanation of its effect on IHSS services conspicuously on its website by the close of business on Monday, October 26, 2009. Defendants shall serve and file a declaration of compliance by Thursday, October 29, 2009.
The Court denies Plaintiffs' motion for class certification without prejudice to refiling (Docket No. 20) and denies Defendants' motion for reconsideration of the temporary restraining order (Docket No. 169). The Court denies Defendants' motion, made orally at the hearing, for a stay pending appeal.
IT IS SO ORDERED.
NOTES
[1] The Court takes judicial notice of Plaintiffs' Exhibits A through I to their request and the State Defendants' Exhibits A and B to their request. These documents consist of publications by state officials and agencies which contain facts that are not subject to reasonable dispute in that they are capable of accurate and ready determination by resort to sources whose accuracy cannot be reasonably questioned.
[2] It is not clear why, but these areas do not include many other tasks for which IHSS hours may be authorized, such as helping with self-administration of medications or transportation to doctors' appointments.
[3] The parties refer to these numerical ranks of functioning as "functional ranks."
[4] "Paramedical services include the administration of medications, puncturing the skin or inserting a medical device into a body orifice, activities requiring sterile procedures, or other activities requiring judgment based on training given by a licensed health care professional." Cal. Welf. & Inst.Code § 12300.1.
[5] In the three mental tasks (i.e., memory, orientation and judgment), recipients can be given ranks of only one, two or five.
[6] Plaintiffs concurrently filed a motion for class certification. However, Defendants concede that "there is no need for the Court to consider class certification at this time." Opposition at 31. "District courts are empowered to grant preliminary injunctions `regardless of whether the class has been certified.'" Brantley v. Maxwell-Jolly, 656 F. Supp. 2d 1161, 1178 n. 14 (N.D.Cal.2009) (citing Schwarzer, Tashima and Wagstaffe, Federal Civil Procedure Before Trial, § 10:773 at 10-116 (TRG 2008)). Thus, Plaintiffs can obtain class-wide injunctive relief before moving to certify a class and the Court denies Plaintiffs' motion without prejudice to refiling at a later date.
[7] The Court has considered and hereby denies Defendants' request for reconsideration of the temporary restraining order.
[8] Each side has challenged the admissibility of the evidence submitted by the other side. However, on a motion for a preliminary injunction, the Court may consider inadmissible evidence, giving such evidence appropriate weight depending on the competence, personal knowledge, and credibility of the declarants. 11A Charles A. Wright, Arthur K. Miller & Mary K. Kane, Federal Practice and Procedure § 2949 at 216-217 (2d ed.1995); see also Flynt Distrib. Co. v. Harvey, 734 F.2d 1389, 1394 (9th Cir.1984) ("The urgency of obtaining a preliminary injunction necessitates a prompt determination and makes it difficult to obtain affidavits from persons who would be competent to testify at trial. The trial court may give even inadmissible evidence some weight, when to do so serves the purpose of preventing irreparable harm.") Therefore, the Court will exercise its discretion to consider the proffered evidence as appropriate.
[9] Defendants assert that Plaintiffs' "sufficiency" claim under 42 C.F.R. § 440.230(b) fails because a federal regulation, by itself, does not create a privately enforceable right. See Alexander v. Sandoval, 532 U.S. 275, 286-87, 291, 121 S. Ct. 1511, 149 L. Ed. 2d 517 (2001). However, federal regulations may carry preemptive force, see, e.g., Geier v. American Honda Motor Co., 529 U.S. 861, 884-86, 120 S. Ct. 1913, 146 L. Ed. 2d 914 (2000), and, as such, they may provide a cause of action for injunctive relief under the Supremacy Clause.
[10] Because the Court concludes that a preliminary injunction is warranted based on Plaintiffs' likelihood of success on their Medicaid Act, ADA integration mandate and due process claims, the Court need not determine the likelihood of Plaintiffs' success on their other claims under the ADA.
[11] State Defendants argue that Plaintiffs have not shown that any "named plaintiffs" are likely to suffer imminent, irreparable harm. Opposition at 28. However, Defendants do not point to any Ninth Circuit law that imposes the requirement that the Court should consider only the risk of institutionalization faced by the named Plaintiffs, and not by other class member declarants. Moreover, because Defendants have conceded that the instant injunction may apply to the entire class before such a class is certified, the Court can look beyond the named Plaintiffs when analyzing this aspect of the preliminary injunction motion. Further, even if Defendants' argument is correct, the named Plaintiffs in this case are likely to face the risk of unnecessary institutionalization.